Autistic History: AUT10k or MSSNG project and Parallels to T4 from World War II

The organization we love to hate, Autism Speaks, teamed up with google to create the largest genome data base for autism on June 10, 2014. This was originally called AUT10k. It stands for Autism 10,000 genomes. This project will cost $50 million. 

Bob Wright, the co founder of Autism Speaks says,”We have raised money for the National Institute of Health for the better parts of 10 years, and they have already spent $2 billion of it, and we still don’t have a breakdown of autism. They’re sort of nibbling outside the palace and cannot get in. I think that this will open up a whole word of autism research. Hopefully, we’re going to save 25 years of research in the matter of 18 to 24 months” 

Autism Speaks lacks autistic representation. They lack autistic membership on the board. There are only two autistic board members. They do not represent the desires and needs of the autistic community. Autism Speaks research budget ignores inquires focused on improving the lives of autistic people. At the time, there was only 1% of their budget going to family services. They only had .25% paying for adult services. The rest of the budget focuses on wiping us from existence.

Autism Speaks partnered with Google so Google would store this data base on their cloud platform. Autism Speaks has the largest private collection of DNA samples from autistic people. There is over 12,000 samples with detailed phenotyping. Phenotyping is observing characteristics of a individual based on their genome. Observing people based on their DNA makeup. It helps with classifying genetic material. 

“This is a really exciting time for us,” said Rob Ring, who was Chief Science Office for Autism Speaks at the time. He also said that without google, the project would not have been possible. “The goal is to build an open-access database for the entire research community.”

“This is as secure as it gets,” Ring said. “The important thing is that the data has been identified,” with names and other personal information stripped out, he claimed and researchers who will be using it will have to agree with certain terms of use.

A complete human genome contains close to 25,000 genes and it takes up 100 gigabytes of space. This is the same storage as 10 HD movies when uploaded to a computer. Storing an analysing that much data and sharing it is more than most universities and research institutions can handle. Google partnered with Autism Speaks to give them the power of a cloud platform. 


Why not invest in services that actually benefit autistic people?

But what are these terms? Nobody knows. They cannot give specific regulations on how they handle the DNA samples. DNA is a violation of privacy. This also raises alarm for informed consent. The parents and families have consented but they do not know who will have access to their loved ones genetic material and who will be using it for what purpose. They do not disclose what privacy protections that were in place for this project. It is still not available , five years later. Due to the project being online, any researcher could have access to any person’s DNA. There is no protection against commercial use. Anyone can use this information for any purpose. No one will be informed when their DNA is used.  We are people too.  During the  T4 program as part of the Holocaust , the families did not have informed consent when their relatives were taken away to the “hospitals.” They were judged if they were worthy based on a survey without having medical records reviewed. They were either forced to be sterilized or killed. We deserve dignity and the right to privacy!

“This announcement represents an unprecedented intersection of business, science and philanthropy that will drastically accelerate the pace of autism research,” Bob Wright co- founder of the hate group, “The insight and expertise the Google team brings to the table is unmatched. Utilizing Google Cloud Platform further advances Autism Speaks’ commitment to advancing cutting-edge science.”

It is precedented. In  in the T4 program, they wanted a “master race” and sterilized people according to the chances of having a disabled child. It was forced. This history happened all over again without the killing. Think about it T4 AUT10k. Sound similar?

Modern biology has become a data-limited science. Modern computing can remove those limits,” David Glazer, engineering director for Google Genomics, “We are excited … about the opportunity for Google Cloud Platform to help unlock causes and treatments of autism.”

The only reason to study genetics is to practice eugenics. Eugenics is the science of improving a human population by controlled breeding to increase the occurrence of desirable heritable characteristics. Developed largely by Francis Galton as a method of improving the human race, it fell into disfavor only after the perversion of its doctrines by the Nazis. Eugenics was a significant part of Hitler’s Final Solution. 

This was launched in corroboration with the Hospital For Sick Children’s Centre and Applied Genomes Project in Toronto.

Since when are autistic people sick? We do well in this world with the proper support. They need to stop trying to get rid of us. They are seeking to wipe us from this planet. They decide who is worthy of having dignity and who is not. The families are not involved with this. They sign consent to find the “autism genome” and that is it. No further information about this project is given. 

“The Autism Speaks AUT10K Program is a remarkable achievement,” Dr. Steve Scherer,  director of the Center and who will be the director of AUT10K,  “The collaboration between a pioneering tech company and the foremost autism science organization has the potential to transform the autism research landscape in exceptional ways. No other organization outside of major health institutions and academia has accomplished this much this quickly.”

This was later renamed the MSSNG project. The vowels are missing because they say they have missing information. If they listen to autistics, maybe their information would be whole. 



UPDATE:

New article came out in April of 2021. There has been an enourmous backlacklash about MSSNG on Twitter. The current data is on 11,312 different  people. THis includes 5,102 autistic people and 6,079 allistic people. There is a PDF that can be downloaded of the project’s website. The website says this data will be shared widely with researchers for “identification of many subtypes of autism.”

There was a tweet on March 30th by @AnarchistMemeCo with a screenshot of tweets

This post triggered other autistic people to speak out. This post has gotten a lot of attention, as it should!  

As the community has been saying since its inception, this was created because neurotypical people who do not accept autistic people stigmatize autism and want everyone to be neurologically the same.  

Sources:
https://mcp.bs.jhmi.edu/what-phenotyping-0
https://www.cbsnews.com/news/google-to-help-build-worlds-largest-genomic-database-on-autism/
https://abcnews.go.com/Health/mssng-project-partnership-autism-speaks-google-autism-research/story?id=27460433
https://www.newsweek.com/autism-speaks-partnering-google-cure-autism-sparks-backlash-1580272https://www.cnbc.com/2014/11/06/can-google-find-the-cure-for-autism.html

4 thoughts on “Autistic History: AUT10k or MSSNG project and Parallels to T4 from World War II

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  3. Pingback: Problematic Organization: Autism Speaks → Fierce Autie

  4. Pingback: I am Autism author Billy Mann makes a Fake apology as an A$ Board Member → Fierce Autie

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