On March 11, I was messaged about participating and promoting a study to “improve autism.”I got defensive and told her she was ableist. Here is the original message:
Hi, I have a favor to ask. I’m trying to help a friend that is involved with getting participants for a study trying to predict autism, Dr Robert Naviaux, the Dr that is researching Suramin for the treatment of ADS needs 400 children, 200 with and 200 without autism before they can even start. If they don’t have all participants enrolled by June 1, 2020, they will have to start the whole application process over.
This study may help PREVENT children from EVER developing ASD
Genetic vulnerability + certain environmental exposures = ASD
Can you please help by sharing the information below with your group?
YOUR HELP IS NEEDED!
Dr Robert Naviaux, the Dr that is researching Suramin for the treatment of ADS, is getting ready to start a very important study and needs our help.
If you have a child/children age 3-10 who was born in California, we hope you will participate!
There is no blood draw or in-person visit involved. Ten minutes of your time, a signed consent form and a completed questionnaire, that’s all it takes to contribute to this exciting research. Blood samples will be used from the Newborn Screen
test, that was done by the State of California, shortly after your child was born.
To say thank you, $40 Amazon gift cards will be given to participants.
Predicting Autism Risk May Begin with a Drop of Blood
Within days of birth, a few drops of blood are collected from every newborn in California—and across the United States—which are then stored on filter paper and screened for dozens of genetic and congenital disorders, such as phenylketonuria (PKU), an inherited metabolic disorder that can result…
MAR 11, 2020, 9:09 PM
Why would i help you commit eugenics?
You can now call each other and see information like Active Status and when you’ve read messages.
Amanda, since sending requests out, I understand that some people may take offense to what I’m asking.
I understand how you would view this like that, but that’s not what this is all about. Besides looking at the mitochondrial dysfunction, GI issues, environmental effects of genetically sensitive people (like myself)and the similarities between autism and a terrible illness ME/CFS, which I unfortunately have. Later this year Dr Naviaux will be investigating suramin and how the drug helps autistic children and patients that have lost their lives to ME/CFS.
I have close family members, on different levels of the spectrum,
I do understand that there are co-occurring medical conditions. I have watched my sister care for her nonverbal son for 30 years. If Dr Naviaux could discover why the mitochondrial problems exist, or how to help the nonverbal autistic community communicate with those that love them, if there was something that would improve his life, I would push for it.
I apologize if my request has upset you and I thank you for taking the time to share your thoughts with me.
I’m autistic and t4 should be a thing of the past. Isn’t my existence valid?
Do you even know what t4 is?
Your eugenics leads to this
(photo of intestinal lining from bleach enemas)
Of course your existence is important! As are the existence of my three nephews. I’m not very familiar with the different types of autism, I’ve spent the last 15 years of my life mostly bed bound, with an illness that has many of the same illnesses that plague the autism community. If I had to guess, I would say that it’s related to thyroid problems.
Parents are poisoning their children with bleach to ‘cure’ autism. These moms are trying to stop it.
Private Facebook groups urge parents to poison autistic kids with chlorine dioxide to “cure” them. These moms are going undercover to fight back.
Don’t message autistic people with this ableist crap
Some people don’t have the sense that god gave them, as they used to say. I’m sorry I upset you. Have a wonderful evening
Seen by Lynn Riggio at March 11, 2020 at 9:30 PM
‘Dr. Naviaux reported in his TACA talk on October 20, 2019, “The UC San Diego Naviaux lab team had a great meeting with the FDA this summer. They are very supportive of the Suramin trials. The company making the new Suramin now thinks they will be able to launch the SAT2 trial in Spring 2021. Preparing for the SAT2 is a many-step process that is keeping dozens of dedicated people busy. We are making steady progress. Once we are within 6 months of an actual start date, I will be able to give a more precise estimate of when we will actually begin enrolling patients.”’
- Cloudy urine
- crawling or tingling sensation of the skin
- faintness, especially after missing meals
- increased skin color
- joint pain
- loss of appetite
- numbness or weakness in arms, hands, legs, or feet
- skin rash
- stinging sensation on skin
- swelling on skin
- tenderness of the palms and the soles
- tire easily
- Changes in or loss of vision
- extreme tiredness or weakness
- increased sensitivity of eyes to light
- painful tender glands in the neck, armpits, or groin
- swelling around eyes
- ulcers or sores in mouth
- watery eyes
- Cold and clammy skin
- decreased blood pressure
- difficulty in breathing
- fever and sore throat
- fever with or without chills
- increased heartbeat
- loss of consciousness
- pale skin
- pinpoint red spots on skin
- red, thickened, or scaly skin
- swelling and/or tenderness in upper abdominal or stomach area
- swollen and/or painful glands
- unusual bleeding or bruising
- unusual tiredness or weakness
- yellow eyes or skin
- Abdominal pain
- general feeling of discomfort
- metallic taste
With these adverse reactions, the study professionals state there were no safety concerns. They clearly recorded the adverse reactions to the drug.
With reading all this, NO ONE should be giving this drug with the variety of adverse effects by this medication.
“Special note from the researchers:Suramin is not approved for the treatment of autism. Like many intravenous drugs, when administered improperly by untrained personnel, at the wrong dose and schedule, without careful measurement of drug levels and monitoring for toxicity, suramin can cause harm. Careful clinical trials will be needed over several years at several sites to learn how to use low-dose suramin safely in autism, and to identify drug-drug interactions and rare side effects that cannot currently be predicted. We strongly caution against the unauthorized use of suramin.”
Cell danger response hypothesis – MEpediawww.me-pedia.org › wiki › Cell_danger_response_hyp…