Ableism, CoMorbidities, Disability Culture, Disabled Parenting, Discrimination, EDS

Stop Your Internalized Ableism, Your Kids Don’t Care About Your Mobility Aids

Internalized ableism can manifest in many ways. Its not just some ideas about autism, it could be about any physical, mental or neurological condition as well. For those who are new here, I have Ehlers Danlos Syndrome. It effects my mobility when I am on my feet for a long time at one time. Last… Continue reading Stop Your Internalized Ableism, Your Kids Don’t Care About Your Mobility Aids

CoMorbidities, EDS, Growing up undiagnosed

Diagnosis of Ehlers Danlos Syndrome and What a Flare Up is Like

Clues From My Childhood My whole life I had had random pain and injuries I could not explain. I was often told I was faking it or doing it for attention. My parents who were supposed to protect me and take care of me gas lit me my entire life, especially medically. I had a… Continue reading Diagnosis of Ehlers Danlos Syndrome and What a Flare Up is Like

CoMorbidities, Disability Culture, Disabled Parenting, EDS

Transitioning to Being An Ambulatory Wheelchair User

So about a year ago, I was diagnosed with EDS. It took a long time to get a diagnosis because of the myth that only people who are not overweight can have EDS. I am overweight because I have PCOS. EDS is a connective tissue disorder that causes hyper mobility, stretchy skin, unexplained injuries (my… Continue reading Transitioning to Being An Ambulatory Wheelchair User