Disabled Parenting, Growing up undiagnosed

Keeping Autistic Kids Off the Internet Does Not Protect Them, Teaching Internet Safety Does

My Experience with Being Banned from the Internet As a Child The internet first started to grow when I was in high school. My mother had a friend from Shul who worked for the local cable company and we had high speed internet early. It was great except I was the only one not allowed… Continue reading Keeping Autistic Kids Off the Internet Does Not Protect Them, Teaching Internet Safety Does

Disability Hacks, Disabled Parenting

Americans: Did you know Medicaid Covers Nutrition Shakes, Incontience Supplies, and weighted vests?

Medicaid covers more than what they tell parents and patients.  I made this discovery a few years ago. N is on pedicure for weight gain. J is on pedicure because sometimes she cannot eat due to stomach issues.  Pediasure We were worried about N not gaining enough weight and because of how tiny he was.… Continue reading Americans: Did you know Medicaid Covers Nutrition Shakes, Incontience Supplies, and weighted vests?

Disabled Parenting

Always Presume Competence, The Consequences Can Be Dangerous

It is extremely important to presume competence in everyone. It does not matter if the person is disabled or not. The consequences can be dangerous.  Yesterday morning, N jumped off his top bunk and landed on the floor. My husband tried catching him but was unsuccessful. We kept him home from school that day and… Continue reading Always Presume Competence, The Consequences Can Be Dangerous

Autistic History, Disability History, Disabled Parenting

The Effects of Eugenics is Being Felt in Doctors Offices, Even Now

Many think eugenics is a thing of the past. It was not left to die when the Nazi party fell or when the autism DNA project had clapback. It is especially evident when the genetic test for Down's syndrome was made widely available. Now there is a test to see if your fetus has Down's… Continue reading The Effects of Eugenics is Being Felt in Doctors Offices, Even Now

CoMorbidities, Disability Culture, Disabled Parenting, EDS

Transitioning to Being An Ambulatory Wheelchair User

So about a year ago, I was diagnosed with EDS. It took a long time to get a diagnosis because of the myth that only people who are not overweight can have EDS. I am overweight because I have PCOS. EDS is a connective tissue disorder that causes hyper mobility, stretchy skin, unexplained injuries (my… Continue reading Transitioning to Being An Ambulatory Wheelchair User

Ableism, Disabled Parenting, Discrimination

Joint Hate Campaign Against My Children By Fiona Oleary and Connie Manning

Not one of mine but it was sent to me. If the creator comes forward, I will credit them.                The Outpouring Love From the Community                   She claims I sell his medical supplies and medically neglect him You cannot sell… Continue reading Joint Hate Campaign Against My Children By Fiona Oleary and Connie Manning

ADHD, Diabetes, Disabled Parenting

Child Abuse Prevention Month: The Story of J, D and A

Child abuse comes in all different forms. Child abuse looks like some things that one might not think of. J, D and A are my brothers and sister in law that my husband and I have custody of due to abuse at home and abuse in foster care. My husband and the children share the… Continue reading Child Abuse Prevention Month: The Story of J, D and A

ABA, Disabled Parenting

When 2e child Is Placed in the Correct School Setting

When a child is placed in an inappropriate setting at school, it affects the child in more settings than school. My son N is 10 years old. He has been in typical classes since he was in preschool. He was diagnosed as autistic when he was 3. When trying to get hims services we were… Continue reading When 2e child Is Placed in the Correct School Setting

Disabled Parenting

When The Public Schools Fail Your Autistic Child

It is not uncommon for autistic children to fall through the cracks with the education system. It should never be like this but it is.  It happened to two of my sons,  N and Bug and my niece B. I am explaining what happened here and how I handled it in hopes it helps someone. … Continue reading When The Public Schools Fail Your Autistic Child

Disabled Parenting

Bedwetting and How a Neurodivergent Family Handles it

Bedwetting is not just an issue among the neurodivergent community. There are many reasons a child wets the bed.  There are physical conditions where it is seen in. Two of my children have this issue. It does not need to be a big deal where children need to be embarrassed by it. The two children… Continue reading Bedwetting and How a Neurodivergent Family Handles it