CoMorbidities, EDS, Growing up undiagnosed

Diagnosis of Ehlers Danlos Syndrome and What a Flare Up is Like

Clues From My Childhood My whole life I had had random pain and injuries I could not explain. I was often told I was faking it or doing it for attention. My parents who were supposed to protect me and take care of me gas lit me my entire life, especially medically. I had a… Continue reading Diagnosis of Ehlers Danlos Syndrome and What a Flare Up is Like

Disability Hacks

Disability Home Hacks: Angry Mama

  This is something I saw online for years. It called angry mama. So the thing is if you put it in a microwave after filling it with water and vinegar and microwaving it for 7 minutes it would make it super easy to clean.   I didn’t believe it. I didn’t buy one until… Continue reading Disability Home Hacks: Angry Mama

CoMorbidities, Disability Culture, Disabled Parenting, EDS

Transitioning to Being An Ambulatory Wheelchair User

So about a year ago, I was diagnosed with EDS. It took a long time to get a diagnosis because of the myth that only people who are not overweight can have EDS. I am overweight because I have PCOS. EDS is a connective tissue disorder that causes hyper mobility, stretchy skin, unexplained injuries (my… Continue reading Transitioning to Being An Ambulatory Wheelchair User